Town Halls

Join Cure JM and receive invitations to our monthly Town Halls. 

Our monthly Town Halls provide an open forum to let your voice be heard! We provide a platform for dialogue between families and JM experts on topics important to you. By joining, you will connect with leading physicians and researchers on breaking updates, hear inspiring patient stories, and learn about new programs. The Town Hall is your direct link to connecting and participating in the programs that are driving our mission forward! Join us today to be a force in our progress. 

Hear from various speakers on topics of interest to Cure JM families, including information on the JDM basics, new treatments, the latest research updates, and other support for JM families.  

Photo of a zoom meeting with coffee cup and laptop


Upcoming Town Halls
Register Today!

January Cure JM Town Hall 2024, large image

As the New Year rises, a hopeful horizon brightens for Cure JM. It is with great thanks to our Cure JM community for your extraordinary commitment to funding new research as we move into 2024. Celebrate the achievements with us as we review our community’s impact and our goals for the new year. 

Jim Minow, Executive Director, will update on recent research breakthroughs, new treatment options, and plans to expand Cure JM’s Clinical Care Network. 

Andrew Heaton, Chief Scientific Officer, will update families with the latest information on new treatments on the horizon, including deucravacitinib and vamorolone. 

Shannon Malloy, Director of Family and Community Engagement, will update on the latest developments in physician education programs, family education and support programs, and our plans for family connections in the coming year. After the call, families are invited to stay on the line for a brief social time featuring breakout rooms for parents, grandparents, and young adult patients.

Join us for the session by registering at the link below:

Tuesday, January 23rd 1:00 PM Eastern – https://us02web.zoom.us/meeting/register/tZ0qcumorjMuHdU-VRofwXdqIjkgQDhbNbeO

Watch Prior Town Hall Recordings

Ways to help your kids and yourself cope living with JM

Cure JM Mental Health Coordinator, Suzanne Edison discusses ways to help your kids and yourself cope living with JM. Learn about emotional and behavioral challenges that often come with chronic diseases like juvenile myositis and ways to help patients and caregivers cope.

Ask the Doc - Sun Protection Tricks and Tips - Sheila Angeles Han and Kalyani Marathe

“Ask the Doc” – Sun Protection Tricks & Tips for Summer 2023

With summer underway, we are honored to share our latest “Ask the Doc” Town Hall on Sun Protection Tips and Tricks for Summer. In this session, Shelia Angeles-Han, MD, MSc, and Kalyani Marathe, MD, MPH of Cincinnati Children’s Hospital, share the importance of sun protection for JM patients.

Sun Protection Tips & Tricks: What Parents, Grandparents, and Patients Need to Know

Ask The Doc: Why Exercise and Nutrition Are Important In JM with Brian Feldman MD

Ask The Doc: Why Exercise and Nutrition Are Important In JM

We are honored to share this insightful presentation and Q&A on the importance of exercise and nutrition in treating juvenile myositis with Dr. Brian Feldman of The Hospital for Sick Children and the Cure JM Clinical Care Network.

What role does exercise and nutrition play in JM treatment? When should JM patients be cleared for exercise? What effects do exercise and nutrition have on disease outcomes?

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