Season of Gratitude
I am writing to wish you and your family the very best this Holiday Season. This time of year, especially, I am filled with deep
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I am writing to wish you and your family the very best this Holiday Season. This time of year, especially, I am filled with deep
Two special guest speakers, Michelle Vogel, MPA, IV Solutions RX, and Laurel Cherwin, BSN, RN, IgCN, Octapharma, shared information on navigating affordable treatments and care
You may have heard about yesterday’s FDA ruling, which approved vamorolone as an alternative steroid for use in Duchenne muscular dystrophy.
Vamorolone is a
In October, Cure JM had two speakers give an update about drug discovery in juvenile myositis.
Cure JM Mental Health Coordinator, Suzanne Edison discusses ways to help your kids and yourself cope living with JM. Learn about emotional and behavioral challenges
Building friendships with others in the JM community can be difficult. Since JM is a rare disease, medical common ground might be a state away.
It often takes a bit of time for children with juvenile myositis (JM) to get a proper diagnosis. This is due to the fact that
Practical tips on how to navigate your child’s school system. Presented by Michelle Best (special education and mental health advocate) and Sue Carpenter (special education
The 10th Annual Cure JM Medical Symposium in partnership with Duke University happened May 13th, 2023, virtually, with presentations from world-leading researchers and clinicians on
This session is for newly diagnosed families and covers JM basics, common treatments, sun protection, partnering with your medical team, keeping track of medical records,
Why is emotional/mental health important to our JM kids? Where can I find out more about mental health issues for our JM kids? Where can
Research Grants: New Grantees and Exciting Updates From Existing Grant Recipients This year saw a very strong field of grant applications across a variety of
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