Myositis and You

“This gem of a book is a great resource to educate, remove some of the fears, and provide hope for anyone faced with living with this disease.”

John H. Klippel, MD
Former President and CEO, Arthritis Foundation

Receive a free digital copy of the book by joining Cure JM here.

Cure JM Foundation funded the first book ever published about juvenile myositis: Myositis and You.

Co-edited by one of our founders, this comprehensive guide features over 450 pages with contributions from over 80 experts and medical professionals. Myositis and You is available through amazon.com.

By reading this book, you will:

  • Learn what juvenile myositis (JM) is and how to explain it to children and teens
  • Understand the symptoms of JM, tests used to diagnose it, and how to find medical help
  • Find strategies to help cope with JM as a family
  • Understand treatment options and how health professionals track your child’s progress
  • Discover a number of resources to assist you in your journey

Proceeds from the sale of this book will help fund further research into juvenile myositis.

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Executive Director Update - A Season of Gratitude

Season of Gratitude

I am writing to wish you and your family the very best this Holiday Season. This time of year, especially, I am filled with deep appreciation for all that Cure JM families have accomplished to advance our mission, to improve the lives of children living with JM, and to support the doctors and researchers driving better treatments as we fight for a cure.

Affordable and Accessible Treatments for JM

Affordable and Accessible Treatments for JM

Two special guest speakers, Michelle Vogel, MPA, IV Solutions RX, and Laurel Cherwin, BSN, RN, IgCN, Octapharma, shared information on navigating affordable treatments and care for JM patients.

The FDA’s Ruling on Vamorolone in DMD

You may have heard about yesterday’s FDA ruling, which approved vamorolone as an alternative steroid for use in Duchenne muscular dystrophy.

Vamorolone is a new steroid alternative with fewer side effects than prednisone. The drug aims to preserve the beneficial anti-inflammatory and muscle-strengthening characteristics of corticosteroids, while decreasing some of the unwelcome side effects, including bone fragility, delayed growth, and behavior changes.

As we learned in yesterday’s announcement, vamorolone was found to be both safe and effective as a therapy for Duchenne muscular dystrophy in its newly approved indication.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

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Cure JM supports families, patients, and the juvenile myositis research community.

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